Community Resources & Services Local Community Health Charities affiliates work within your community to create strategic alliances and connect employees with resources and services of health charities in your community. Please note program is not available in all states. HMatW in DC - National Capital Area Our Partners' Programs feature the services and resources that our member charities provide in your community. Learn how you can implement Health Matters at Work® in your organization. For Volunteer opportunities, please click on the Additional Information tab. ALS Association -DC/MD/VA Chapter Autism Speaks, National Capital Area Family Services Resources - provides resources by state on more about autism, the latest books, magazines articles, educational manuals, software and more. Lending Library- donate or borrow therapy materials for other families to use. Summer Camp Program - A camp for individuals with autism to have fun, relax and take a break from a busy schedule during the summer. Autism Safety Project - provides first responders information on how to effectively communicate with someone with Autism Spectrum Disorder.
Breast Cancer Network of Strength Mid-Atlantic A Day for You - an all day event to learn about early detection, taught how to do self exams and receive clinical exams. Mammograms can also be arranged for those who are qualified. Support Groups - join a support group. These meetings provide a supportive and safe environment for women who have experienced breast cancer to express themselves and listen to others discuss breast cancer. Breast Health Awareness Workshops - workshops presented in a concise 60-minute format where attendees will learn about Breast health awareness, 3-pronged approach to earlier detection, Breast self-exam (BSE) by viewing an instructional video and be able to practice BSE on breast forms. At Your Fingertips - local resource guide to help you, your family and friends, and your health care team find information and resources in one place that will help you make important decisions. Your Shoes - a 24/7 Breast Cancer Support Center- 1-800-221-2141.
Center for Child Protection and Family Support Victim Service Center- provides therapeutic services for children in need of treatment due to physical abuse, neglect, sexual victimization or having witnessed domestic violence. Parent Education & Skill Building - parent education and skill-building programs to families to help reduce stress and enhance parenting skills. Training is interactive, informative and culturally sensitive. Children's Program - promotes self-esteem and safety awareness for preschoolers between the age of 3 and 6. Youth Services/ Afterschool Programs - works with youth to increase their use of community resources, expose them to cultural and recreational activities and academic enhancements and prevent youth in substance, tobacco and alcohol use. Teresa Wilk Memorial Scholarship - one time academic scholarship to a student attending college or university in Maryland, northern Virginia or DC in the field of social work.
Chesapeake-Potomac Spina Bifida Association Spina Bifida Hotline - families can receive information and referral services by calling 1-888-733-0988. Special Needs Fund - financial assistance to individuals with spina bifida. Can be used for unsupported medical costs and support services. Education Conference - provides those with spina bifida, their families and health care providers with current best practices in diagnosis, treatment and prevention.
Children’s Cause for Cancer Advocacy Rise to Action- an education and leadership development program for childhood cancer survivors from teens to thirties. Virtual Rise to Action - archived videos, presentations, and information available online from experts on a wide range of topics. Survivor’s Lobby Day-held in the Spring, brings together young adult cancer survivors on Capitol Hill for a day of mobilizing against childhood cancer.
Colorectal Cancer Coalition Research- working with the gastrointestinal research community to identify emerging areas of study that should be explored. Policy & Advocacy- C3 works to bring political attention to the needs of colorectal cancer patients. Webinars- one hour webinar on "Improvements to Care & Screening for Colorectal Cancer."
Crohn’s & Colitis Foundation of America Greater Washington DC/VA Chapter CCFA Physician Member- an online list of physicians, nurses, and other healthcare professionals who are members of CCFA in your state or country. Inclusion on this list does not mean that the healthcare professional is recommended by CCFA. It also does not mean that the physician or healthcare professional specializes in the treatment of Crohn's disease or ulcerative colitis.
Clincal Trials Search- an easy way to find local ongoing trials and participants. Includes information on genetic stuides that you can particpate in the search for the IBD genes. IMPORTANT: The purpose of this registry is to provide information about ongoing clinical trials related to IBD. We do require that investigators who wish to be listed provide us with notification that the trial has been approved by their institutional review board (IRB), and each listing is reviewed by the Patient Education Committee of CCFA's National Scientific Advisory Committee. However, apart from studies that are funded by CCFA, the foundation does not endorse or ensure the scientific merit of trials listed in this registry. People who wish to participate in a study should discuss the opportunity with their personal physician.
Cystic Fibrosis Foundation- Metropolitan Washington DC Chapter CF Care Centers- Located at teaching and community hospitals across the country,these care centers offer the best care, treatments, and support for those with CF. CF Basic Research Centers - Bringing scientists together to address the challenges of cystic fibrosis. There are ten Foundation-supported research centers. Patient Assistance Programs - Information on programs that can help those with cystic fibrosis afford the medical care and drugs they need. CF Legal Information Hotline - Provides free information about the laws that protect the rights of those with cystic fibrosis. (1-800-622-0385).
Diabetes Research Institute Foundation of D.C. Clinical Trials - Clinical trials offer participants the opportunity to play an active role in their own healthcare. Patients involved in diabetes clinical trials can also access potential new treatments before they are widely available. Podcasts- Various educational podcasts on diabetes. PEP Squad - Parents Empower Parents is a diabetes support group for parents of children with diabetes. Mentors can reach out to newly diagnosed families.
Epilepsy Foundation Metropolitan Washington Clinical Trials - Clinical trials are necessary to test the effectiveness of new therapies and to develop better ways of using known treatments. Grant & Fellowship Opportunities - Grants to advance the understanding of epilepsy that will lead to better treatment, more effective prevention, and ultimately to a cure.
Epilepsy Foundation of Virginia Advocacy - Grassroots advocacy network to effect change at local, state and national levels.
Hemophilia Association of the Capital Area Summer Camp for Kids - A summer camp for children with bleeding disorders between the age of 7 and 15. Blood Buddies - Blood Buddies provides group activities for youth with bleeding disorders who are between 13 and 20. This gives them a chance to build relationships and discuss common issues. Bruise Brothers - Bruise brothers provides social activities for affected youth between 7 and 12 and their parents. HACA Family Assist Program- Seeks to help individuals/families with bleeding disorders with financial support to cover uncovered medical bills or basic living expense emergencies. Home Care Companies - A list of home care companies that services for persons with bleeding disorders.
Huntington’s Disease Society of America, Washington Metro Area Chapter Newsletters - Outlook provides tips for those living with Huntington’s disease and their caretakers as well as discussing issues that affect HD patients and families. Support Groups - Support groups in Bethesda, MD and Bailey’s Crossroads, VA.
Juvenile Diabetes Research Foundation International- Capitol Chapter Bag of Hope - Contains educational and comforting support materials for newly diagnosed individuals. School Resources - Information for families, nurses, teachers and school administrators about type 1 diabetes and how it can impact children. Mentor Program - JDRF provides a person with Type 1 diabetes or their family member with a mentor who has had a similar experience. Support Groups - A list of support groups in the local area and online.
Leukemia & Lymphoma Society, National Capital Area Call Center - Provides up-to-date disease and treatment information. (1-800-955-4572) Family Support Groups - Meetings where patients and their families can discuss concerns and exchange information. Patient Financial Aid Program- Limited funds available to help patients with significant financial need who are under a doctor’s care for a confirmed blood cancer diagnosis. Live online chats - Live chats are offered to registrants and are moderated by oncology social workers. Co-Pay Assistance Program - Offers assistance to patients toward cancer treatment related co-pays, private health insurance premiums, private insurance co-pay obligations, Medicare Part B, Medicare Plan D, Medicare Supplementary Health Insurance and Medicare Advantage premium or co-pay obligations.
Lupus Foundation of America, Greater Washington Chapter Support Groups - Support groups in DC, Maryland,Virginia and online which are led by trained professionals. Research - Information about the Lupus Foundation’s efforts to support new research and drug development. Education - A library of upcoming and archive workshops and teleconferences on lupus.
March of Dimes Foundation-Maryland-National Capital Area Chapter Mama & Baby Bus - The bust provides free prenatal and dental care to pregnant women in wards 1, 2, 4 and 5 in DC. NICU Family Support - Aims to help the hospital make the Neonatal Intensive Care Unit (NICU) experience less traumatic for families. Stork’s Nest - Provides prenatal education and incentives for low-income pregnant women. Project Alpha - Provides young men with education, motivation and skill-building on issues of responsibility, relationships, teen pregnancy and sexually transmitted diseases. Advocacy - Information on March of Dimes focus is on federal and state policies relating to improving the health of babies by preventing birth defects, premature birth and infant mortality.
Muscular Dystrophy Association- Capital Chapter Support Groups - MDA offers several support groups for families and children facing neuromuscular diseases. Please contact 703-476-5780 to find times and dates.
Myasthenia Gravis Foundation of America Maryland/DC/Delaware Chapter Lending Library and Newsletter- A list of books that you can loan from the Maryland/DC/Delaware Chapter on Myasthenia Gravis and current and archived newsletters.
NAMI Northern Virginia Support groups - various support groups for families and friends and those with mental illnesses. Newsletter - View the NAMI Northern Virginia newsletter to see chapter news. In Our Own Voice- People with mental illness share their experiences with others. This presentation is free of charge and offered as public education. NAMI Basics- Free class for the parents and caregivers of children and teens with mental health concerns.
NAMI- Prince George’s County, MD Pancreatic Cancer Action Network of the National Capital Area Survivor and Caregiver Network- Volunteers throughout the country communicate one-on-one with those diagnosed with pancreatic cancer, their loved ones or anyone looking to connect with someone who has experienced pancreatic cancer.
Parkinson Foundation of the National Capital Area Community Lecture Series- Free monthly community lectures in Maryland and Virginia feature speakers- therapists, patients, doctors. Support Group Leader Training Day- Every six months PFNCA support group leaders, professionals and volunteers come together to enhance their leadership skills and assure that support group needs are being met. Newsletter-information about new treatments and features articles on living with Parkinson’s disease. Caregiver Training- Every six months caregivers, professionals and volunteers gather for a day of community and education. Patient Assistance Fund-Provides financial assistance for direct and essential medical patient services for Parkinson’s patients. Exercise Classes- Exercise classes to can provide significant benefits to those with PD, includes improved ability to speak and swallow. Dance Classes- Dance classes are offered weekly in to help Parkinson’s patients move with grace.
Prevent Blindness Mid-Atlantic School Nurse Resources- A website dedicated to school nurses and providing them with the resources to administer certified vision screenings. Voucher Program- The voucher programs provide free eye exams and/or glasses for qualified students. Eyewatch-A program where a facilitator informs participants about eye diseases, educates them on available community resources, or offers support to those already suffering from vision loss.
Primary Care Coalition of Montgomery County Care for Kids- Health care to uninsured low-income children up to age 19 who are not eligible for other state or federal health programs.
Sickle Cell Association of the National Capital Area Newsletter-The newsletter, published at least twice a year, educates consumers on managing their sickle cell disease, examines emerging issues and research and provides information on the chapter events.
The Washington Home and Community Hospice Long Term Care- Washington Home provides long term care including medical care and skilled nursing care. Subacute Rehabilitation Care- Provides rehabilitative services for people with medically complex needs resulting from surgery, stroke, trauma or other debilitating conditions. Bereavement Counseling- Counseling those who are grieving. Counselors can also do home visits or phone consultations.
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